Zach Cooley

Tag: Cerebral Palsy

Not A Sparrow Falls drops today

Not A Sparrow Falls drops today

On August 15, 1926, Wytheville experienced perhaps the darkest hour in its history, when one of its citizens was lynched solely because the color of his skin was Black. Long before the lynching of Raymond Byrd was memorialized on a plaque at the site of the former Wythe County jail, a friend of mine, David Monahan, approached me with the idea of writing a novel inspired by this tragic event. From the very beginning, the idea both compelled and frightened me. I was deeply drawn to the story, yet I felt I lacked both the courage and, perhaps more importantly, the lived experience to tell it responsibly. For more than a decade, I wrestled with that truth. Ultimately, I arrived at a novel that includes this history—but in fictionalized form. Names have been changed, and certain circumstances differ from the historical record. I still do not feel qualified to tell the full truth of this story as it deserves to be told. That work has already been done with great care and scholarship by the late local historian John Johnson in his book They Gathered a Mob. My novel, however, seeks to tell a more multifaceted story. While I do not understand—and would never claim to understand—what it means to be societally ostracized because of race, I do know what it feels like to be treated as a third-class citizen as a person with a disability. A century ago, the experience was far harsher. If a disabled child survived birth at all, institutionalization was often immediate and permanent. That reality was another truth I wanted to confront in this story. One of my sister’s favorite books is To Kill a Mockingbird. It is one of mine as well. Inspired by it, I introduced a disabled teenage boy and his younger sister into the narrative, drawing from our own childhood. I included memories of strolling the streets of our neighborhood together, planning imaginary journeys, always accompanied by our dog, Fluffy—who was tragically killed by a car. After I lost another dog years later, I was devastated by the thought that I might never see him again. I had been told that animals do not go to heaven. That idea broke my heart. Dogs love unconditionally in the way God calls humans to love—and so often, we fall short where animals do not. I could not accept that such love would be excluded from eternity. Years later, a caseworker visited my home, and I shared that grief with her. She introduced me to Matthew 10:29: “Are not two sparrows sold for a penny? And yet not one of them will fall to the ground apart from your Father.” I held onto that verse. I carried it with me for years. It became the spiritual foundation of this book. I knew I wanted to write a story that paid tribute to Raymond Byrd, to the pets I have loved and lost, and to people with disabilities like myself—to affirm that a meaningful quality of life should never be denied to any of us. At its heart, though, this book is also a tribute to my sister. She is six years younger than I am, yet she often took better care of me than I ever did of her as her big brother. My childhood was wonderful because I had the greatest playmate in the world. She was my baby, and she is the reason I wanted to become a father. Through her, I learned the joy, tenderness, and purpose that come from loving a child. She has always been kind, funny, generous, and loving. Today, she remains among my truest friends and my most trusted confidants. This book is as much a tribute to her as it is to anything else. On a more serious note, I want readers to see the connection—however uncomfortable—between the mistreatment and misunderstanding of people of color, people with disabilities, and even animals. These are very different experiences, but they share a common root: the denial of dignity. In the end, we are all God’s creatures, and we are far more alike than different. If the idea that “not a sparrow falls” does not convey that truth, then my work has failed. Not a Sparrow Falls has the potential to be the most important book of my career—but only if people are willing to engage with its message. If you are open to examining the unsettling parallels between our present moment and the world of a hundred years ago, I humbly invite you to read it. As its back cover summarizes, “In the shadowed hills of 1920s Virginia, teenager Eli Ellis moves through life in a wheelchair, his sharp eyes and quiet strength carrying more than just the weight of his own body. Beside him is his little sister Sill, brave and bold with a sketchbook always in hand, and their dog Fluffy — until the day violence steals more than just their peace. When a lynching in their town is hushed, the siblings record the dirty secrets of Stones Mill. Their handmade book spreads faster than whispers in the church pews, drawing admiration, suspicion — and danger. As community support swells and opposition turns threatening, the Ellis family is pushed to the edge, facing down the powerful men who would rather preserve silence than face justice. Eli must find his voice, not just on the page but in the town square, as the truth begins to stir hearts and shake foundations. Based on true events, Not a Sparrow Falls is a tender, unflinching portrait of a small town at the crossroads of conscience. Told through Eli’s wise and wounded voice, it is a story of resistance, remembrance, and the quiet resilience of those who refuse to be erased.” This is the strongest statement I have ever made as an author. If you give it a chance, I would genuinely love to hear whether its message reached you. Not a Sparrow Falls is now available on Amazon in hardcover…

Strictly Observing

Mikey Watson: Wheelchairs 4 Kids

Mikey Watson: Wheelchairs 4 Kids

Mikey Watson celebrated his 17th birthday on February 8th with an extra special gift. Like me, the Marion resident suffers from cerebral palsy and desperately needed a travel power wheelchair. When insurance denied his claim, Mikey’s devoted aunt and my longtime friend, Sarah Taylor, located a Florida-based company that funds mobility devices for children up to the age of 21. Through sponsorship, Mikey received his power wheelchair from Wheelchairs 4 Kids just in time for his birthday. “I like the opportunity to be more independent,” Mikey told me. “I want to go on more trips and the new chair will make that easier. It is easy to lift and travels at a walking speed, not too fast and not too slow.” I spoke with Programs Manager Nina Shaw, who explained to me how they helped my young friend. “A lightweight power chair gives Mikey the independence of a motorized device without the need for a special vehicle,” she explained. “They can fold up like a stroller and be stowed in the trunk of a car, which opens up a whole new world of opportunities for Mikey.” Wheelchairs 4 Kids is a nonprofit organization dedicated to improving the lives of children with physical disabilities, founded in 2011 by Madeline Robinson, who formerly with another wish-granting organization. She founded her organization with her loving husband Lonnie who encouraged her when she was dismayed at the disheveled condition of these children’s equipment. “Well, are you going to talk about it or do something?” he asked. As a result, Wheelchairs 4 Kids was born. Since then, more than 1,800 children with mobility impairments from across the country have been aided at no cost to them. Nina Shaw joined the organization just over eight years ago when she moved to Florida. She started out as a program coordinator before being promoted to project manager, where she now leads a team of five. “We have the most fun job in the company,” Shaw stated. “We get to talk to the kids and their families and be there when they receive their equipment.” She also noted that kids aren’t always as thrilled about receiving wheelchairs as their parents are. So, Shaw and her team go the extra mile by bringing gifts for the kids and creating presentations to make the experience more enjoyable for them. For Shaw, it is particularly heartwarming to see the tears of joy on the faces of the parents when they receive the equipment that insurance had previously denied for their child. “These families have fought with Medicaid for basic needs for their children and been turned down,” she said. “We get to come in and give them what they deserve—free, to keep forever. It’s a really awesome job to have.” Shaw also mentioned their Wheely Fun Day program, an inclusion event created by the organization, which allows wheelchair-bound kids to experience things like zip lining at Gatorland in Orlando. “I just got a letter from a parent expressing gratitude because she never believed her child could experience anything like that,” she added. “Most people are not aware that things like this are possible for their kids, and it’s great to make families aware of that.” Shaw says these events also foster a sense of community, where parents of disabled children can connect and form support groups. Disabled children also have the chance to meet peers who are like them. Though Shaw did not meet Mikey personally, she acknowledges that the company is growing, which allows them to sponsor children nationwide. Wheelchairs 4 Kids reaches out to local charities and social clubs for sponsorship and conducts social media campaigns encouraging friends and family to donate. “I tell family and friends that we will do whatever it takes to find the equipment their kids need,” she asserted. “We will look under rocks for the money if we need to, but we will make it happen.” Besides wheelchairs, the organization provides other mobility equipment, such as standers, gait trainers, and walkers. They also assist with small home modifications, like widening doorways to accommodate wheelchairs, and provide entrance and exit ramps and bathroom remodels for roll-in showers. They can even subsidize the addition of small lifts to modified vehicles, enabling unoccupied wheelchairs to be properly transported. “Even though power chairs are often obtained through insurance, families are often faced with only being able to use the power chair inside their homes or on the school bus,” Shaw noted. “These are problems we try to solve.” Shaw says she has learned about the endless variety of individual equipment needs for every person. No two cases are the same, so there is no blueprint for mobility equipment. “The prices of these equipment modifications are astounding,” she said. “They are unnecessarily high simply because they are for special needs.” “People don’t know how to interact with people with disabilities,” she added. “They don’t understand that they’re just like everyone else. I enjoy getting to be an advocate for them to help break the barrier between the disabled community and the rest of the world.” In closing, Shaw mentioned the Guardians of the Wheel Kids Club, where donors can set up automatic monthly donations to the program, starting at a minimum of $10. As for Mikey, he plans to celebrate his birthday by hosting a Wheelchairs 4 Kids fundraiser party. For more information on the organization and how to donate, visit www.wheelchairs4kids.org.

Strictly Observing